OUR IMPACT

For medically complex babies,
care coordination isn't a nice-to-have.

It's the difference between 86% survival and 76%. And that's just the beginning.

OUR SCALE | OUTCOMES | RESEARCH | FAMILY IMPACT | SYSTEM RECOGNITION

PROGRAM SCALE

Real children. Real families. Real outcomes.

Behind every number is a medically complex baby who deserved — and received — a dedicated coordinator by their side.

1,200+

CHILDREN SERVED

Medically complex infants enrolled in LHL care coordination programs across five top-ranked Level IV NICUs since 2018.

500+

PROGRAM GRADUATES

Families who completed the program — meaning their child reached a healthier, more stable place and they have the skills to navigate complex care independently.

MEASURED PROGRAM OUTCOMES

  • 86% vs 76%

    86% 2-year survivability — compared to 76% without our program. In plain terms: our coordinators are helping babies live who otherwise might not.1

    Make It

  • 0%

    Zero families lost to follow-up in peer-reviewed study — when medically complex babies disappear from care, the consequences can be devastating. Our coordinators make sure that never happens.

    Make It

  • 23

    Median completed specialist appointments per patient in the first 3 months home — on top of medications, equipment, insurance, and sleepless nights.1

    Make It

  • 96%

    Of parents felt empowered to advocate for their child — families who arrived terrified and left confident.2

    Click Here

  • 70%

    Of enrolled families face significant barriers to navigating care — families who, without a dedicated coordinator, may not make it through.1

    Click Here

  • 5

    Top-ranked Level IV NICUs that have independently adopted and institutionalized the LHL model.

    Click Here

SOURCES

  1. Voller S, Dizon MLV, Matoba N, Ryan AA, Mestan KK. Impact of Longitudinal Care Coordination on Medically Complex Infant Outcomes in a Level IV Neonatal Intensive Care Unit. Pediatrics Open Science. 2025;1(2):1–11. doi:10.1542/pedsos.2024-000228

  2. Dallas A, Ryan A, Mestan K, Helner K, Foster C. Family and Provider Experiences With Longitudinal Care Coordination for Infants With Medical Complexity. Advances in Neonatal Care. 2023;23(1):40–50. doi:10.1097/ANC.0000000000000998

  3. Clark S, Cohn L. Impact of the Partners for Children Pilot Program on Medicaid Utilization and Expenditures. Susan B. Meister Child Health Evaluation and Research (CHEAR) Center, University of Michigan. June 2020. Delivered to Michigan Department of Health and Human Services.

  4. Vance AJ et al. Neonatal Care Coordination Multi-Site Longitudinal Cohort Study. NIH R01 Application, 2025. Participating sites: Lurie Children's Hospital, C.S. Mott Children's Hospital, Rady Children's Hospital, Helen DeVos Children's Hospital.

"These are at-risk families that would not make it, I believe, without a coordinator."

— Neonatologist, Lurie Children's Hospital